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Condition information

Developmental and epileptic encephalopathy

A group of conditions in which developmental difficulties and frequent epileptic activity may both affect progress.

What families may notice

  • Seizures beginning in infancy or childhood
  • Developmental delay, plateau or regression
  • Multiple seizure types or difficult-to-control epilepsy

How assessment may help

Assessment may include detailed EEG, MRI, genetic testing and metabolic investigations chosen for the individual child.

The child’s own pattern matters. Similar symptoms can have different causes, and tests are selected only after considering the history and examination.

What to bring

  • A referral letter and previous medical reports
  • A current medicine and dose list
  • EEG, MRI or CT reports and the actual images where available
  • School or therapy reports relevant to the concern
  • Safe phone videos of typical episodes, without delaying care or placing the child at risk

Planning the next step

Contact the practice for a non-urgent appointment request. Sudden, severe or rapidly worsening symptoms should be assessed through an emergency service rather than an online form.

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